Cathy G 8/3/26 Cathy G 8/3/26

#89 Living Beyond the Shadows: Life with Erythropoietic Protoporphyria

Craig Leppert shares his life with erythropoietic protoporphyria, the creation of Shadow Jumpers, and his mission to help photosensitive families find community, freedom, and joy.

Cathy G 12/1/25 Cathy G 12/1/25

#73 Running Toward a Cure: NF2 Advocate Becomes Marathon Runner to Raise Awareness and Funds

At 16 years old, Leanna Scaglione was diagnosed with NF2-Related Schwannomatosis, having to leave her dreams of becoming a ballerina behind, she altered her athletic journey becoming a multi-marathon runner.

Cathy G 10/20/25 Cathy G 10/20/25

#70 The First Spinraza Patients: A Rare Mama’s Advocacy for her Son with SMA

Nikki McIntosh, a rare disease advocate, shares how her family has navigated her son’s diagnosis of Spinal Muscular Atrophy (SMA).

Cathy G 9/1/25 Cathy G 9/1/25

#67 Exploring Clinical Trials in Latin America with Julio G. Martinez-Clark

Discover how Latin America offers new opportunities for clinical trials and how Julio G. Martinez-Clark is leading the way in advancing medical device innovation in emerging markets.