#93 When an Oncologist’s Wife Gets Cancer: “Off Our Chests” Authors Share Their Story
Liza Marshall and her oncologist husband, Dr. John Marshall, share how her breast cancer diagnosis transformed their marriage, their perspectives on medicine, and their understanding of what it means to be a patient and caregiver.
#89 Living Beyond the Shadows: Life with Erythropoietic Protoporphyria
Craig Leppert shares his life with erythropoietic protoporphyria, the creation of Shadow Jumpers, and his mission to help photosensitive families find community, freedom, and joy.
#73 Running Toward a Cure: NF2 Advocate Becomes Marathon Runner to Raise Awareness and Funds
At 16 years old, Leanna Scaglione was diagnosed with NF2-Related Schwannomatosis, having to leave her dreams of becoming a ballerina behind, she altered her athletic journey becoming a multi-marathon runner.
#70 The First Spinraza Patients: A Rare Mama’s Advocacy for her Son with SMA
Nikki McIntosh, a rare disease advocate, shares how her family has navigated her son’s diagnosis of Spinal Muscular Atrophy (SMA).
#67 Exploring Clinical Trials in Latin America with Julio G. Martinez-Clark
Discover how Latin America offers new opportunities for clinical trials and how Julio G. Martinez-Clark is leading the way in advancing medical device innovation in emerging markets.