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It Happened To Me Podcast
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It Happened To Me Podcast
Episodes
About the Podcast
Contact
Subscribe
Episodes
About the Podcast
Contact
Subscribe
#72 Wolfram Syndrome Expertise from Dr. Fumihiko Urano [Re-Release]
Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 11/17/25 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 11/17/25

#72 Wolfram Syndrome Expertise from Dr. Fumihiko Urano [Re-Release]

Dr. Fumihiko Urano shares his world renowned expertise from leading the clinical, translational, and interventional studies of Wolfram syndrome and related disorders.

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#71 When the Diagnosis Comes Late: Navigating Adult Wolfram Syndrome
Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 11/3/25 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 11/3/25

#71 When the Diagnosis Comes Late: Navigating Adult Wolfram Syndrome

From misdiagnosis to empowerment, Rachel Hyman and Cathy Gildenhorn share their real stories of being diagnosed with a rare disease, Wolfram Syndrome, in adulthood.

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#56 Navigating Dual Diagnoses: Amy Raskin Shares Parenting Strategies for Diabetes and Celiac
Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 3/17/25 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 3/17/25

#56 Navigating Dual Diagnoses: Amy Raskin Shares Parenting Strategies for Diabetes and Celiac

One parent's experience managing her child’s two conditions: type 1 diabetes (T1D) and celiac disease.

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#26 Wolfram Syndrome Expertise from Dr. Fumihiko Urano
Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 12/18/23 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 12/18/23

#26 Wolfram Syndrome Expertise from Dr. Fumihiko Urano

Dr. Fumihiko Urano shares his world renowned expertise from leading the clinical, translational, and interventional studies of Wolfram syndrome and related disorders.

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#25 Pancreatic Cancer with Patient Advocate Leslie Waldman
Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 12/4/23 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 12/4/23

#25 Pancreatic Cancer with Patient Advocate Leslie Waldman

Leslie Waldman shares her personal diagnosis of pancreatic cancer, which she has lived with for 10 years.

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#9 Wolfram Syndrome with Stephanie Gebel Snow
Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 4/3/23 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 4/3/23

#9 Wolfram Syndrome with Stephanie Gebel Snow

Stephanie Gebel Snow shares her perspective as a patient advocate creating the Snow Foundation for Wolfram Syndrome research.

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