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#70 The First Spinraza Patients: A Rare Mama’s Advocacy for her Son with SMA

Nikki McIntosh, a rare disease advocate, shares how her family has navigated her son’s diagnosis of Spinal Muscular Atrophy (SMA).

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#69 Breath by Breath: Kenny Kasnett’s Journey Through Lung Disease and Transplant

Kenny Kasnett, a seasoned executive and entrepreneur whose life took an unexpected turn with a diagnosis of interstitial lung disease (ILD) leading to a choice, should he get a lung transplant?

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#68 The Hidden Danger in Newborns: OTC Deficiency Explained by a Geneticist and a Mother

Pruitt was born with ornithine transcarbamylase (OTC) deficiency, hear from his mother Jordan Kruse and geneticist Dr. Susan Berry about the condition and how healthcare can do better.

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#67 Exploring Clinical Trials in Latin America with Julio G. Martinez-Clark

Discover how Latin America offers new opportunities for clinical trials and how Julio G. Martinez-Clark is leading the way in advancing medical device innovation in emerging markets.