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It Happened To Me Podcast
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It Happened To Me Podcast
Episodes
About the Podcast
Contact
Subscribe
Episodes
About the Podcast
Contact
Subscribe
Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 4/6/26 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 4/6/26

#81 How to Support Someone with Chronic Illness

Patient experience expert Meredith Mangold shares how to build a sustainable support system that honors the invisible journey.

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Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 1/19/26 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 1/19/26

#76 When Pain Never Stops: A Survivor’s Story of Chronic Pain and Hope

One woman’s journey through devastating chronic pain—and the personalized care that helped her reclaim her life.

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Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 1/5/26 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 1/5/26

#75 Genetic Testing for Rare Diseases with Amy Patterson [Re-Release]

Genetic Counselor Amy Patterson shares about genetic screening and testing available for rare disease including her speciality of skeletal dysplasia.

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Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 9/15/25 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 9/15/25

#68 The Hidden Danger in Newborns: OTC Deficiency Explained by a Geneticist and a Mother

Pruitt was born with ornithine transcarbamylase (OTC) deficiency, hear from his mother Jordan Kruse and geneticist Dr. Susan Berry about the condition and how healthcare can do better.

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Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 8/4/25 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 8/4/25

#65 Invisible Swells: Surviving with Hereditary Angioedema Type III

Sally Pirie opens up about the condition that has plagued her family for decades: Hereditary Angioedema Type III (HAE-3).

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Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 5/19/25 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 5/19/25

#60 CRISPR, Community, and Courage: A Deep Dive into Sickle Cell Advocacy

Fellow podcasters Wunmi Bakare and Dima Hendricks open up about their experiences living with sickle cell disease and how they have become advocates.

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Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 5/5/25 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 5/5/25

#59 From Diagnosis to Memoir: Laura Kieger’s Mission to Share Her Family’s FAP Story

Author Laura Kieger educates on the hereditary cancer syndrome, Familial Adenomatous Polyposis (FAP).

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Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 4/21/25 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 4/21/25

#58 Living Deafblind: Carrie Francis’ Resilience After 5th Degree Facial Cleft

Despite being told she wouldn’t survive beyond her first week of life, Carrie has overcome extraordinary medical challenges, including severe blindness and hearing impairment from her rare 5th-degree facial cleft.

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Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 4/7/25 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 4/7/25

#57 APOL1-Mediated FSGS: What Families Need to Know, from Diagnosis to Advocacy

Jaime Albright Henighan shares her family’s journey after two of her sons were diagnosed with a rare genetic kidney disease called APOL1-mediated FSGS (Focal Segmental Glomerulosclerosis).

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Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 2/3/25 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 2/3/25

#53 From Journalist to Advocate: Laura Bonnell’s Mission to Support Cystic Fibrosis Families

Parent Laura Bonnell shares about her two daughters who were diagnosed with cystic fibrosis which lead to her advocacy.

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Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 1/20/25 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 1/20/25

#52 Adaptive Toys for Kids with Disabilities: Inspiration from Daughter with Rett Syndrome

Podcaster, Father and Advocate shares about his daughter and how he created adaptive toys and products for others in the disability community.

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Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 1/6/25 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 1/6/25

#51 Niemann-Pick Type C: Understanding Symptoms, Genetics, and New Treatments

Patient advocate and parent Barbara Lazarus shares about her son’s condition and their doctor, Dr. Caroline Hastings, provides her expertise.

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Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 12/16/24 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 12/16/24

#50 Neuromuscular Neurology Explained: Symptoms, Treatments, and Advances with Dr. Bucelli

A deep dive into neuromuscular disorders with one of the field's leading experts, Dr. Robert Bucelli.

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Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 12/2/24 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 12/2/24

#49 Living with NMOSD: Alex Brito's Journey of Resilience and Advocacy

Discover how Alex Brito turns life with NMOSD into a story of strength, advocacy, and inspiration.

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Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 7/1/24 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 7/1/24

#39 Genetic Testing for Rare Diseases with Amy Patterson

Genetic Counselor Amy Patterson shares about genetic screening and testing available for rare disease including her speciality of skeletal dysplasia.

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