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It Happened To Me Podcast
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It Happened To Me Podcast
Episodes
About the Podcast
Contact
Subscribe
Episodes
About the Podcast
Contact
Subscribe
#60 CRISPR, Community, and Courage: A Deep Dive into Sickle Cell Advocacy
Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 5/19/25 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 5/19/25

#60 CRISPR, Community, and Courage: A Deep Dive into Sickle Cell Advocacy

Fellow podcasters Wunmi Bakare and Dima Hendricks open up about their experiences living with sickle cell disease and how they have become advocates.

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#59 From Diagnosis to Memoir: Laura Kieger’s Mission to Share Her Family’s FAP Story
Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 5/5/25 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 5/5/25

#59 From Diagnosis to Memoir: Laura Kieger’s Mission to Share Her Family’s FAP Story

Author Laura Kieger educates on the hereditary cancer syndrome, Familial Adenomatous Polyposis (FAP).

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#58 Living Deafblind: Carrie Francis’ Resilience After 5th Degree Facial Cleft
Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 4/21/25 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 4/21/25

#58 Living Deafblind: Carrie Francis’ Resilience After 5th Degree Facial Cleft

Despite being told she wouldn’t survive beyond her first week of life, Carrie has overcome extraordinary medical challenges, including severe blindness and hearing impairment from her rare 5th-degree facial cleft.

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#57 APOL1-Mediated FSGS: What Families Need to Know, from Diagnosis to Advocacy
Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 4/7/25 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 4/7/25

#57 APOL1-Mediated FSGS: What Families Need to Know, from Diagnosis to Advocacy

Jaime Albright Henighan shares her family’s journey after two of her sons were diagnosed with a rare genetic kidney disease called APOL1-mediated FSGS (Focal Segmental Glomerulosclerosis).

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#53 From Journalist to Advocate: Laura Bonnell’s Mission to Support Cystic Fibrosis Families
Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 2/3/25 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 2/3/25

#53 From Journalist to Advocate: Laura Bonnell’s Mission to Support Cystic Fibrosis Families

Parent Laura Bonnell shares about her two daughters who were diagnosed with cystic fibrosis which lead to her advocacy.

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#52 Adaptive Toys for Kids with Disabilities: Inspiration from Daughter with Rett Syndrome
Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 1/20/25 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 1/20/25

#52 Adaptive Toys for Kids with Disabilities: Inspiration from Daughter with Rett Syndrome

Podcaster, Father and Advocate shares about his daughter and how he created adaptive toys and products for others in the disability community.

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#51 Niemann-Pick Type C: Understanding Symptoms, Genetics, and New Treatments
Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 1/6/25 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 1/6/25

#51 Niemann-Pick Type C: Understanding Symptoms, Genetics, and New Treatments

Patient advocate and parent Barbara Lazarus shares about her son’s condition and their doctor, Dr. Caroline Hastings, provides her expertise.

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#50 Neuromuscular Neurology Explained: Symptoms, Treatments, and Advances with Dr. Bucelli
Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 12/16/24 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 12/16/24

#50 Neuromuscular Neurology Explained: Symptoms, Treatments, and Advances with Dr. Bucelli

A deep dive into neuromuscular disorders with one of the field's leading experts, Dr. Robert Bucelli.

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#49 Living with NMOSD: Alex Brito's Journey of Resilience and Advocacy
Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 12/2/24 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 12/2/24

#49 Living with NMOSD: Alex Brito's Journey of Resilience and Advocacy

Discover how Alex Brito turns life with NMOSD into a story of strength, advocacy, and inspiration.

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#39 Genetic Testing for Rare Diseases with Amy Patterson
Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 7/1/24 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 7/1/24

#39 Genetic Testing for Rare Diseases with Amy Patterson

Genetic Counselor Amy Patterson shares about genetic screening and testing available for rare disease including her speciality of skeletal dysplasia.

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