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It Happened To Me Podcast
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It Happened To Me Podcast
Episodes
About the Podcast
Contact
Subscribe
Episodes
About the Podcast
Contact
Subscribe
#72 Wolfram Syndrome Expertise from Dr. Fumihiko Urano [Re-Release]
Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 11/17/25 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 11/17/25

#72 Wolfram Syndrome Expertise from Dr. Fumihiko Urano [Re-Release]

Dr. Fumihiko Urano shares his world renowned expertise from leading the clinical, translational, and interventional studies of Wolfram syndrome and related disorders.

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#71 When the Diagnosis Comes Late: Navigating Adult Wolfram Syndrome
Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 11/3/25 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 11/3/25

#71 When the Diagnosis Comes Late: Navigating Adult Wolfram Syndrome

From misdiagnosis to empowerment, Rachel Hyman and Cathy Gildenhorn share their real stories of being diagnosed with a rare disease, Wolfram Syndrome, in adulthood.

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#26 Wolfram Syndrome Expertise from Dr. Fumihiko Urano
Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 12/18/23 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 12/18/23

#26 Wolfram Syndrome Expertise from Dr. Fumihiko Urano

Dr. Fumihiko Urano shares his world renowned expertise from leading the clinical, translational, and interventional studies of Wolfram syndrome and related disorders.

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#21 Wolfram Syndrome with Parent Pat Gibilisco
Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 10/2/23 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 10/2/23

#21 Wolfram Syndrome with Parent Pat Gibilisco

Pat Gibilisco is Patient Advocacy Liaison for the Snow Foundation for Wolfram Syndrome research. In 2021, her daughter Lauren died from Wolfram Syndrome in her mid-30s.

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