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It Happened To Me Podcast
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It Happened To Me Podcast
Episodes
About the Podcast
Contact
Subscribe
Episodes
About the Podcast
Contact
Subscribe
Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 10/19/26 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 10/19/26

#94 Remembering Brooke Eby: Living with ALS, Humor, and Hope

In memory of Brooke Eby, we revisit our most-listened-to conversation with the beloved ALS advocate whose humor, honesty, and extraordinary online community brought awareness to what it means to face ALS as a young adult.

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Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 10/5/26 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 10/5/26

#93 When an Oncologist’s Wife Gets Cancer: “Off Our Chests” Authors Share Their Story

Liza Marshall and her oncologist husband, Dr. John Marshall, share how her breast cancer diagnosis transformed their marriage, their perspectives on medicine, and their understanding of what it means to be a patient and caregiver.

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Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 9/21/26 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 9/21/26

#92 Multiple Myeloma While Mothering Two Young Children

A young mom shares her diagnosis, treatment away from her daughters, and life after an aggressive blood cancer.

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Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 9/7/26 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 9/7/26

#91 Walking Away From Triple Bypass: Jack Clifford’s Experience with EECP

After being advised to undergo emergency triple bypass surgery, Jack Clifford shares why he walked away and pursued EECP.

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Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 8/3/26 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 8/3/26

#89 Living Beyond the Shadows: Life with Erythropoietic Protoporphyria

Craig Leppert shares his life with erythropoietic protoporphyria, the creation of Shadow Jumpers, and his mission to help photosensitive families find community, freedom, and joy.

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Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 7/20/26 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 7/20/26

#88 Six Years of Infertility and $100,000 in Fertility Treatments

After six years of infertility and more than $100,000 in fertility treatments, Jessica Chalk shares in this podcast episode, the emotional, financial, and deeply personal realities of trying to build a family.

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Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 7/6/26 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 7/6/26

#87 Redefining Disability with Congenital Muscular Dystrophy

Kelly Berger and Avery Roberts share how living with congenital muscular dystrophy shaped their disability identity, advocacy, and mission to build community through Wheel Talk podcast.

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Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 4/20/26 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 4/20/26

#82 Paralyzed Overnight: Relearning to Walk After Guillain-Barré Syndrome

From a sudden loss of movement to an inspiring story of recovery, Ra-Jon James shares his journey of surviving Guillain-Barré Syndrome and the grueling, triumphant process of relearning how to stand and walk again.

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Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 4/6/26 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 4/6/26

#81 How to Support Someone with Chronic Illness

Patient experience expert Meredith Mangold shares how to build a sustainable support system that honors the invisible journey.

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Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 3/16/26 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 3/16/26

#80 The Expert's Guide to Autism: Diagnosis, Red Flags, and Evidence-Based Care

Yale-trained scientist and autism parent, Dr. Teresa Lyons demystifies the autism spectrum, offering families a clear roadmap from identifying early red flags and debunking common myths to implementing evidence-based, personalized support strategies.

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Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 3/2/26 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 3/2/26

#79 How Acupuncture Can Support Fertility

Exploring reproductive acupuncture, emotional wellness, and new technology shaping fertility care.

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Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 2/16/26 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 2/16/26

#78 Sudden Vision Loss and Giant Cell Arteritis: When “Healthy” Changes Overnight

One woman’s story of autoimmune disease, emergency diagnosis, and life after vision loss.

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Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 2/2/26 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 2/2/26

#77 When Chronic Illness Changes the Tune: A Musician’s Journey Through Diabetes and Stroke

Carolyn Routh, of the band Nu-Blu, opens up about health, resilience, and returning to the stage after life-altering medical events.

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Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 1/19/26 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 1/19/26

#76 When Pain Never Stops: A Survivor’s Story of Chronic Pain and Hope

One woman’s journey through devastating chronic pain—and the personalized care that helped her reclaim her life.

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Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 1/5/26 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 1/5/26

#75 Genetic Testing for Rare Diseases with Amy Patterson [Re-Release]

Genetic Counselor Amy Patterson shares about genetic screening and testing available for rare disease including her speciality of skeletal dysplasia.

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Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 12/1/25 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 12/1/25

#73 Running Toward a Cure: NF2 Advocate Becomes Marathon Runner to Raise Awareness and Funds

At 16 years old, Leanna Scaglione was diagnosed with NF2-Related Schwannomatosis, having to leave her dreams of becoming a ballerina behind, she altered her athletic journey becoming a multi-marathon runner.

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Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 11/3/25 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 11/3/25

#71 When the Diagnosis Comes Late: Navigating Adult Wolfram Syndrome

From misdiagnosis to empowerment, Rachel Hyman and Cathy Gildenhorn share their real stories of being diagnosed with a rare disease, Wolfram Syndrome, in adulthood.

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Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 10/20/25 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 10/20/25

#70 The First Spinraza Patients: A Rare Mama’s Advocacy for her Son with SMA

Nikki McIntosh, a rare disease advocate, shares how her family has navigated her son’s diagnosis of Spinal Muscular Atrophy (SMA).

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Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 8/18/25 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 8/18/25

#66 Not Just Fatigue: Global Advocating for ME/CFS from Bed

Elizabeth Ansell, founder of #NotJustFatigue, joins the show to share about living with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and the advocacy she does through her non-profit.

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Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 8/4/25 Genetic Counseling, Rare Diseases, Patient Advocate Cathy G 8/4/25

#65 Invisible Swells: Surviving with Hereditary Angioedema Type III

Sally Pirie opens up about the condition that has plagued her family for decades: Hereditary Angioedema Type III (HAE-3).

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